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Connecting with Researchers Focusing on Profound Autism

We believe that knowledge is the cornerstone of progress.

Progress for people with profound autism requires meaningful inclusion in ongoing clinical research. If your research includes people with profound autism, please complete the form below. We will review and, if appropriate, share with members of our community who have expressed interest in being contacted about research participation.

Submitter Information

Study Information

Study Recruitment Details

Start of Study/Recruitment Period

Can participants participate in this study remotely, or does it require in-person participation?

Remote/Online Study

In-person participation required

End Date of Study/Recruitment Period

IRB Study/Protocol Approval

Please upload a copy of your IRB letter.

research indicates that only 6% of studies include people with profound autism.

We believe that autistic people who require lifetime, 24/7 care can and should be included in research.
Their health and quality of life matter.
We are committed to supporting researchers dedicated to this underserved population's meaningful inclusion.

Connecting with Researchers Focusing on Profound Autism

We believe that knowledge is the cornerstone of progress.

research indicates that only 6% of studies include people with profound autism.

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