People with profound autism consistently experience unique, disabling, and often unseen challenges (i.e., safety, intense behaviors) that require immediate and substantive solutions that will provide support to them and their caregivers.
Research indicates that the proportion of studies that included those with profound autism has decreased significantly over time.[1] We are helping to fund inclusive research and working with scientists to make sure people with profound autism are included in clinical research.
[1] Stedman, Amy & Taylor, Briana & Erard, Michael & Peura, Christine & Siegel, Matthew. (2019). Are Children Severely Affected by Autism Spectrum Disorder Underrepresented in Treatment Studies? An Analysis of the Literature. Journal of Autism and Developmental Disorders. 49. 10.1007/s10803-018-3844-y.
