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Profound Autism Sibling Action Network

Siblings of people with profound autism experience unique realities often misunderstood by their friends and other family members.

They have widely different perspectives, possess different skills, and come from diverse backgrounds. Siblings of people with profound autism also frequently lack clarity about what the future holds for them and their siblings with profound autism. 

Our Sibling Action Network will work to fill this void and provide practical information and resources developed by siblings for siblings.

Join the Sibling Action Network

Are you the sibling of someone with profound autism who is interested in becoming involved in our Sibling Action Network? Fill out our interest form at the link below or email us at [email protected]!

Join Us

Siblings of autistic people who need lifetime, 24/7 care have unique experiences that are often overlooked. We can learn a great deal through the experiences that they have to share.

Here are some examples of the valuable perspectives they bring:


INSAR Takeaways from PAA Cofounder, Amy Ursitti

Franklin County mom and daughter attending Sibling Hill Day in Washington, DC, speaking to lawmakers about autism

Giacomo Vivanti on Progress, Steps Backward, and the Reconciliation of Conflicting Narratives

Events & News

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