Resource Network

Bancroft

Campus and community-based residential treatment programs for children with autism and severe behavioral challenges.

Melmark New England

Melmark New England programs provide residential, educational, and rehabilitative services for children, adolescents, and adults diagnosed with autism spectrum disorders, intellectual disabilities, and developmental disabilities. The individuals we serve are able to participate in community outings and trips, and a few of our adults work at off-campus vocational opportunities.

29 Acres

Service Type: Residential Program

Intentional community providing supported living, employment, and life-skills development for autistic adults with moderate support needs.

ABA Clinic

At our ABA clinic in partnership with Autism Services of Virginia, we are deeply committed to providing the highest quality care and support for individuals with autism and their families. Our team of dedicated professionals is trained in the latest Applied Behavior Analysis (ABA) techniques, ensuring that each individual's unique needs and potential are fully addressed and nurtured. We understand that navigating life with autism can be challenging, but you're not alone on this journey. Our clinic offers a comprehensive range of services designed to promote skill development, enhance communication abilities, and foster independence. From personalized therapy sessions to group activities and family training programs, we aim to empower our clients and provide them with the tools they need to thrive. Our mission extends beyond just therapy; we strive to create a warm, welcoming community where individuals with autism can feel understood, accepted, and valued. Through collaboration with Autism Services of Virginia, we have access to an extensive network of resources and expertise, enabling us to offer support that is both holistic and tailored to each individual's needs. Choosing the right ABA provider is a crucial step for your family, and at our clinic, we are dedicated to making this process as smooth and reassuring as possible. We invite you to reach out to us for more information about our services or to schedule a visit. Together, let's take positive steps towards a brighter future for your loved one.

Adaptions By Adrian

Resource Type: Website

Service Type: Adaptive Skills, Other Community, Home Adaptations/Tools

Adaptations By Adrian Since 1993 Formerly known as Adrian's Closet. We have been customizing individually made adaptive clothing for special needs. We strive to ease dressing challenges, of those working within physical limits, to help make daily lives more convenient and easier. Why? Some wheelchair users have dressing challenges, such as uncooperative hands or legs, stiffness, or needing help adjusting clothes while toileting. Circulation problems create cold, swelling feet. A constant seated position creates pressure problems, sensitivity to seams, and the inability to wear store clothing. Come in and see us, as we try to solve these challenges! We're happy to answer questions. You can call us for information. Sorry, we do not take orders over the phone.

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AHRC Nassau

Our family of organizations support all ages and abilities.

AHRC New York City: Guardianship Services

Service Type: Guardianship

Guardianship Services provides education and outreach to families regarding Article 17-A guardianship as well as alternatives to guardianship. Assistance with 17-A guardianship for a family member with a developmental disability who is 18 years or older is available in all five boroughs.

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Arthur Westover, M.D.

Service Type: Psychiatrist

Arthur Westover, M.D., is an Associate Professor in the Department of Psychiatry at UT Southwestern Medical Center. He specializes in adult psychiatry, adult autism, and developmental disabilities in adulthood. Dr. Westover earned his medical degree at Baylor College of Medicine. He completed both his residency in psychiatry a master’s degree in clinical sciences at UT Southwestern. Board certified in psychiatry, he joined the UT Southwestern faculty in 2006. Dr. Westover is Director of Adult Autism Services for the Department of Psychiatry and Medical Director of the UT Southwestern Behavioral Health Clinic at the Richardson/Plano Campus. He is also a member of the UT Southwestern Psychiatric Clinical Leadership Committee and the Psychiatric Outpatient Leadership Committee.

ASTC Passport Program

Resource Type: Website

Service Type: Other Community, Profound Autism Friendly Business

If you are a member of a science center or museum participating in the ASTC Passport Program, you are eligible for benefits such as free general admission when you travel outside of your local area.

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Aurora Behavioral Health Specialized Needs Unit

Service Type: Specialized Inpatient Unit

Offers a special needs behavioral health unit for children and adolescents with intellectual and developmental disabilities.

Autism BrainNet

Autism BrainNet promotes innovative, high-quality research on postmortem brain tissue with the goal of improving the understanding of the biological causes of autism spectrum disorder (ASD) and related neurodevelopmental disorders.

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Autism Commission on Quality

Service Type: Applied Behavior Analysis

The Autism Commission on Quality's (ACQ) mission is to continuously improve the impact of applied behavior analysis services for the autism community through education and accreditation of provider organizations. Autism Commission on Quality is a ACQ is a mission-driven non-profit accreditation body for organizations offering applied behavior analysis services to individuals and families affected by autism. Our mission is to continuously improve the impact of applied behavior analysis services for the autism community through education and accreditation of provider organizations.

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Autism Double-Checked

Autism Double-Checked is a specialized travel agency dedicated to creating seamless vacation experiences for families. They offer personalized service to identify travel options that cater to your family's unique needs, including recommending services available during each step of the journey, such as in airports and transfers. Their team maintains a comprehensive database of hotels, resorts, and transportation options that provide special accommodations for people with autism, ensuring a comfortable and stress-free travel experience.

Autism Housing Pathways

Service Type: Guardianship, Other Housing

Autism Housing Pathways works to educate families in Massachusetts about housing options for adults with developmental disabilities.

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Autism Speaks Autism Response Team

The Autism Response Team (ART) is an information and referral support for the autism community. Our team members are Certified Resource Specialists through Inform USA and are specially trained to provide personalized information and resources to autistic individuals, families, service providers, and the community.

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Autism Speaks Financial Planning Tool Kit

This tool kit provides caregivers of individuals with autism with essential information about financial planning. Topics include Accessing Funding Through State and Federal Programs, Special Needs Trusts, Financial Products & Instruments Used in Planning, ABLE Accounts: A Savings Tool for Individuals with Disabilities, Guardianship and Conservatorship, Finding the Right Professional, The Basics of Budgeting: A Step in the Right Direction, and Financial Assistance.

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Autism Treatment Center

Each person in our program follows an individualized, comprehensive learning program designed by a team of teachers, personal care assistants, administrators, various specialists/consultants, and the individual receiving services and their parent or guardian. This approach allows for small group settings, a structured environment, on-going assessments, parent training, year-around services, and an atmosphere of acceptance and motivation. By providing a lifetime of services and support 24/7/365, ATC is changing lives and building brighter futures for children and adults with autism.

Autism Welcoming

Service Type: Profound Autism Friendly Business

Autism welcoming certifies business and places to have some autism 101 training and how to best set up the environment to be sensory friendly and autism welcoming

Avela Health

Avela Health offers expert-guided, personalized online therapy that fits into real life, utilizing a neurodiversity-affirming approach. At Avela, we recognize that every child is different—and that includes how much support they need and how they experience the world. Some common concerns we help parents of children with profound autism navigate include complex behaviors like self-injury or aggression, daily living and independence skills such as sleep, eating, or toilet training, and sensory challenges. We work with families to create personalized, respectful plans that address these concerns with proactive, feasible strategies—always honoring each child’s unique needs and strengths.

Becoming rentABLE

Service Type: Profound Autism Friendly Business

Certified Accessible Short-Term Rentals in the U.S. and Canada

Beyond Documentary

Beyond follows Tamara Mark, a once rising Broadway and Hollywood star, to a full-time single mother of two nonverbal autistic adults, fighting for her dream to build a community for those alike to live a better and safer life.

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Birch Family Services

Special education and autism support schools serving students with profound autism and complex needs.

Bleiler Cottage

The Bleiler Caring Cottage provides personalized support services for adults with intellectual developmental disabilities.

Bradley Hospital-Center for Autism and Developmental Disabilities (CADD)

Service Type: Specialized Inpatient Unit

Highly specialized clinical services for children and adolescents between 2 and 18 who show signs of serious emotional and behavioral problems in addition to a developmental disability.

Brookville Center – Special Education Schools (Long Island)

"NYSED-approved special education programs for students with autism and developmental disabilities. Home- & Community-Based ServicesEmpty heading Brookville Center provides therapeutic and educational services to children in their own homes, nursery schools, preschools or other natural environments by certified special education teachers and licensed/certified service providers. Services can include speech language therapy, occupational therapy, physical therapy, psychological counseling and parent training. Respite & Recreation ServicesEmpty heading Brookville Center offers weekend respite programs and a vacation/recreation respite during the months of December, April and August. Residential Services for Children With AutismEmpty heading Twenty-five children who attend the Children’s Education Center are supported until the age of 21 in a therapeutic residential environment to promote academic, social and emotional growth."

C.M. Mott Children’s Hospital

Service Type: Specialized Inpatient Unit

Facility sees DD patients on the Child and Adolescent Psychiatric Unit.

CA Care Association

CA CARE ASSOCIATION is a 501(c)(3) organization working with Home and Community Based Care Providers to support the industry through education and Standardized Best Practices. We are advocates for safe, affordable, individualized quality California Licensed Residential Care Facilities and Home Care Services. We are focused on compliance training to help care providers and direct care professionals equipped with tools for dealing with challenging situations while safeguarding the wellness of seniors and adult residents.

California Courts Self-Help Guide: Probate Guardianship in California

Service Type: Guardianship

This guide can help you understand what a guardian does, become a probate guardian, respond (object) if someone started a court case to become your child's guardian, end a guardianship, and ask for visitation rights, as a parent, in guardianship in the state of California.

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Cambridge Health Alliance Neurodevelopmental Disorders Unit (NDU)

Service Type: Specialized Inpatient Unit

Specialty service for children and youth with a primary diagnosis of autism spectrum disorder, intellectual disability, or a related neurodevelopmental disorder, who are also experiencing serious behavioral or mental health challenges that have not responded to other levels of care.

CASP Health Insurance Appeals Guide

Health insurance played almost no role in the treatment of autism before the turn of the century. Although autism was (and still is) a health condition diagnosed by a physician or psychologist pursuant to the Diagnostic and Statistical Manual of Mental Disorders, the health insurance industry left to other systems the financial burden of autism treatment. All of that changed with the enactment of autism insurance mandate laws throughout the first two decades of the 21st century. States mandated that health insurers bear the costs of evidence-based autism treatment for an individual properly diagnosed by a physician or psychologist. This autism insurance reform movement reshaped the entire landscape of autism treatment, in particular Applied Behavior Analysis (ABA), by framing the funding of treatment in terms of medical necessity. Autism service providers learned a new language, created new “insurance manager” positions within their businesses, and embraced a whole new way of thinking about funding for autism services. In this environment, the importance of understanding and pursuing appeals of denied claims has never been greater. A successfully appealed claim can make the difference between ongoing treatment for an individual with autism and unreached potential due to an inability to afford treatment. With a keen understanding of the importance of insurance appeals to families and providers, The Council of Autism Service Providers releases this Guide to set forth clear information that consumers and treating providers need to know when appealing denials of autism services. This Guide was written by leading health insurance experts to help educate individuals about their appeal rights and explain the steps in the appeals process. As part of the efforts to promote health equity, federal and state regulations have been adopted to promote due process for patients who have been denied care because an insurer will not authorize medically necessary coverage or has otherwise made adverse benefit determinations. Unfortunately, the goals of the insurance appeals process are undermined when patients and their treating providers are not aware of their appeal rights and how to best leverage the internal and external appeals systems to try to get medically necessary care covered. Even when patients and providers understand their appeal rights, health plans may still uphold their denial of care. In addition to this Guide, CASP offers training that further providers’ understanding of the appeals process when there is a denial of care for autism. More information is available on the at www.casproviders.org. A special thanks to The Kennedy Forum, Denials Management and Schooner Strategies for helping develop this Guide. If you would like to file a parity complaint, please go to www.parityregistry.org. Please also see CASP’s other resources for providers, funders, and families, which include the CASP ASD Practice Guidelines for Healthcare Funders and Managers, and the CASP Practice Parameters for Telehealth Implementation of Applied Behavior Analysis.

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Children’s Hospital Colorado Neuropsychiatric Special Care Unit

Service Type: Specialized Inpatient Unit

Treats children and adolescents with an intellectual or developmental disability, who are experiencing a behavioral or mental health crisis.

Cincinnati Children’s- Kelly O’Leary Center for Autism Spectrum Disorder

Service Type: Specialized Inpatient Unit

Provides specialized diagnostic, consultative, and short-term treatment options when your child is diagnosed with ASD.

COLAS - Caregivers Of Loved ones with Aggression and Self-injury

We are a virtual support group for the families of the person with profound autism. We meet twice a month.

Communities of Crocus

We are a nonprofit 501(c)(3) created to provide housing with onsite services and support for individuals with autism and similar intellectual and developmental disabilities (A/I/DD), and services and support for there families and caregivers.

Compass Health Systems

Service Type: Respite, Applied Behavior Analysis, Adaptive Skills

Compass Health Systems is an ODP (Office of Developmental Programs) and AAW (Adult Autism Waiver) services throughout the state of Pennsylvania. Compass Health Systems provides services to individuals with disabilities at every stage of life and recognizes the importance of not only providing services to children with disabilities and unique needs but also young adults as they transition into adulthood and beyond. We realize that each individual comes with unique experiences and needs. CHS seeks to empower individuals with disabilities and their families to live happy, thriving, and purposeful lives on their own terms by empowering them with the tools they need to achieve greater independence and to become integral members of their families and communities.

Connecticut Developmental Services

Service Type: Guardianship

This website provides information and forms pertaining to guardianship and alternatives in the state of Connecticut.

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Connecticut Probate Courts: Intellectual Disability

Service Type: Guardianship

The Probate Courts become involved in the lives of adults with intellectual disability when they are unable to care for their physical health or safety or make decisions about such care. In these cases, the courts may appoint a guardian to supervise all or some aspects of the person’s care. Their website provides forms and user guides relevant to the process of establishing guardianship.

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Council of Autism Service Providers

Service Type: Other Community

The Council of Autism Service Providers (CASP) is a non-profit trade association of provider organizations serving individuals with autism spectrum disorder. CASP member organizations provide services in many different settings utilizing a variety of funding streams. CASP represents the autism provider community to the nation at large including government, payers, and the general public. CASP serves as a force for change, providing information, delivering education, and promoting standards that enhance quality.

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CPABA Therapy

At CPABA Therapy, we offer a unique group setting for preschool aged learners who will be transitioning to school, as well as early intervention for children with an autism diagnosis. Every learner is paired with their own team consisting of a Board Certified Behavior Analyst who develops and monitors the learner’s goals and registered behavior technicians who implement programming individualized to incorporate critical skills such as functional communication, following instructions, interacting with peers, and participating in a large group. We are proud to employ highly qualified staff with over 100 combined years of behavior analytic training and experience.

Crossroads Continuum

Service Type: Specialized Autism Center, Caregiver Training, Specialized School, Applied Behavior Analysis, Adaptive Skills, Day Habilitation

Crossroads Continuum is a non-profit, multi-service organization dedicated to enhancing the quality of life for individuals with autism and related disorders from birth through adulthood. For more than 20 years, we've served individuals with autism with personalized, evidence-based services and supports. Our continuum of programs meets the needs of individuals of all ages and abilities. The organization was originally established in 2002 as a school providing individualized, comprehensive education and related services. Crossroads Continuum now works with individuals of all ages and their families in their homes, communities, and other settings.

DDI

Developmental Disabilities Institute (DDI) was founded in 1961 to address the special education needs of children with autism and other developmental disabilities and provide therapeutic intervention. Today, DDI is a dynamic, nonprofit, multi-site agency, each day serving hundreds of children and adults with autism and other developmental disabilities, providing educational, residential, habilitative, vocational, transportation, and self-direction support to the Long Island community. DDI's educational, residential, day, and vocational supports are as diverse as the people we serve. Through more than 60 years of sustained effort, DDI has grown substantially. Our agency recognizes the unique needs of each person for whom we care and maintains the highest standards of teaching for our children, adults, and families, as well as training for our staff. We pride ourselves on utilizing research-based methods across all agency programs.

Delaware Courts Guardianship Forms and Petition Packets

Service Type: Guardianship

This website includes forms and petition packets for establishing guardianship for individuals with disabilities in the state of Delaware.

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Delaware Courts Guide to Guardianship

Service Type: Guardianship

A short guide to guardianship in the state of Delaware

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Delaware Office of the Public Guardian: Adult Guardianships

Service Type: Guardianship

A nuts and bolts summary on adult guardianship created by the Office of the Public Guardian & the Guardianship Monitoring Program in Delaware

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Devereaux

Devereux is one of the nation’s largest nonprofit organizations providing services, insight and leadership in the evolving field of behavioral healthcare. Founded in 1912 by special education pioneer Helena Devereux, Devereux operates a comprehensive network of clinical, therapeutic, educational and employment programs and services that positively impact the lives of thousands of children, adults – and their families – every year. The organization’s unique approach combines evidence-based interventions with compassionate family engagement. With nearly 6,500 employees working in programs across the U.S., Devereux is a trusted partner for families, schools and communities, serving individuals in the areas of autism, intellectual and developmental disabilities, specialty mental health, education and foster care. Our programs are offered in hospital and residential, community and school-based settings. They include: Comprehensive assessment, diagnostics and measurement to support data-driven care Evidence-based treatment and special education Transition and independent life services Family education and professional training Research and innovation to advance the field Advocacy, public awareness and prevention For more than a century, Devereux has been guided by a simple and enduring mission: To change lives by unlocking and nurturing human potential for people living with emotional, behavioral or cognitive differences.

Dr. Jacob Dent,DDS

Service Type: Dentist

Dr. Dent specializes in special needs dentistry. He is trying to change the way dentists care for our community of kids and adults. He is very caring, patient, and kind.

Dr. Dmitriy Niyazov - Duke Health, Medical Genetics Specialist

Service Type: Geneticist

I see patients with mitochondrial and lysosomal storage diseases, developmental delay, intellectual disability, chromosomal disorders, congenital defects, short stature, failure to thrive, and adult genetic disorders. I love the application of rapidly growing genetic knowledge to treat patients with a variety of medical problems that involve a complex interaction of genetic and environmental factors, particularly since the Human Genome Project. I find it fascinating to use the massive power of sequencing technology and artificial intelligence/machine learning to predict phenotypes from genotypes with increasing clinical relevance to human health. In my spare time, I like to hike and play sports with my wife and teenage sons, play piano, and learn famous Russian poetry of the 19th century. I see patients in person and through telehealth.

Dr. Isabelle Chase, DDS

Vast experience providing pediatric dental services at Boston Children’s Hospital. Dr. Chase has an excellent understanding of children with Autism, coaches and directs her support staff accordingly, builds rapport and trust with her patients, and is willing to take the time to make kids comfortable with the exam process.

Dr. Tim Buie’s Managing Medical Issues in Autism Video Series

Service Type: Gastroenterologist

As part of ongoing efforts to improve the medical care experience for those with autism, Tim Buie, MD is the Course Director for a 5-part, accredited video lecture series “Managing Medical Issues in Autism,” which is available on the Boston Children’s Hospital Department of Medical Education website. There are discount codes in this posting you can use when registering to view these self-paced, CME/CE video courses. Managing Medical Issues in Autism video courses feature experts who discuss: - Avoidant/Restrictive Food Intake Disorder in Children with Autism - Behaviors and GI Issues - Communication of Pain and Illness for those with Autism - Treating Children with Autism and GI Problems - Looking for Answers: The Microbiome and Autism Each video is 30-40 minutes long and concludes with Dr. Buie's conversation with the presenter. The videos can be viewed independently in any order or as a 5-part bundle. Use these discount codes, which provide 20% off the CE course fee: mmia1x5 for individual video courses and mmia5 for the 5-course bundle: There are no limits to their use, and they will not expire. Feel free to share these discount codes with your colleagues and please spread the word about this video series, which was created to educate and inform all who care for individuals with autism. Accredited CMEs/CEs are available for Physicians, PAs, RNs, Nutritionists/Dieticians, Social Workers, Psychologists and Physical Therapists.

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Easterseals New York

Provides a broad range of disability services across New York State, including early intervention, autism services, education, therapy, employment supports, community habilitation, day programs, and limited residential services. Programs focus on individuals with intellectual, developmental, physical, and behavioral disabilities.

Eden II

School, residential, and adult programs serving individuals with profound autism.

Endeavor21+ Foundation

Endeavor 21+ Foundation is a 501c3 that actualizes integration by offering adults of all abilities, including young adults with developmental and cognitive disabilities, to learn from, work at, live in, and contribute to the broader Threefold Community.

EPIC Inclusive Communities

Essential Family Services LLC

Individuals that we serve have a variety of intellectual disabilities some of which do have profound autism in which they will require supports for the rest of their lives. Sometimes there autism is also comorbid with other disabilities that we assist them in caring for as well.

Evergreen Center – Residential School

Residential and educational programs for individuals with autism and developmental disabilities.

Facts for Healthcare Professionals: About ABA

Service Type: Applied Behavior Analysis

With input from CASP members and autistic adults who received ABA services as children, CASP has produced educational "Frequently Asked Questions about ABA" documents for healthcare professionals.

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Florida Courts: Guardianship

Service Type: Guardianship

Information and forms for applying for guardianship in the state of Florida

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Foundations Behavioral Health The Autism Spectrum Disorders and Neurodevelopmental Inpatient Psychiatric Hospital

Service Type: Specialized Inpatient Unit

Delivers acute care to children and adolescents ages 5 and older identified as having an ASD and/or related disability with co-morbid psychiatric conditions.

Frequently Asked Questions: Appointment of Guardians and Conservators for Incapacitated Adults

Service Type: Guardianship

A guide by Virginia WINGS (Working Interdisciplinary Networks of Guardianship Stakeholders) on general information regarding the guardianship/conservatorship process.

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Generally Accepted Standards of Care for Applied Behavior Analysis

Resource Type: Book

Service Type: Applied Behavior Analysis

ABA Practice Guidelines (Version 3.0) The purpose of these practice guidelines is to inform decision making regarding the use of ABA as a medically necessary, efficacious, and cost-effective treatment to develop, maintain, or restore, to the maximum practicable extent, the functioning of individuals with ASD. These practice guidelines are based on the best available scientific evidence and expert clinical opinion regarding the use of ABA as a behavioral health treatment for people diagnosed with ASD. The guidelines are intended to provide a concise, user-friendly introduction to the delivery of ABA services for ASD and to reflect consensus standards for the effective practice of these services. They are written for healthcare funders, agents of government health programs and private health insurance plans, regulatory bodies, consumers, and ABA practitioners and employers. These practice guidelines provide information about standards of care in ABA that should be used in planning, implementing, and evaluating assessment and treatment services. As a behavioral health treatment, ABA includes many distinctive clinical and delivery components. It is important for all stakeholders, including those receiving and providing services, coordinating care, administering funding, or building provider networks, to understand the essential elements of ABA.

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Golisano Center for Special Needs Biobehavioral Health Unit (BBHU) at SUNY Upstate Children's Pavilion

Service Type: Specialized Inpatient Unit

The Biobehavioral Health Unit (BBHU) is an 11-bed inpatient unit that provides behavioral and mental health wraparound care, with 1-1 behavioral support. We serve individuals between the ages of 5-17 who present with severe and persistent challenging behaviors and developmental and/or intellectual disabilities. Our approach is multi-disciplinary, combining evidence-based principles, pharmacological intervention, mental health support for patient families, and care coordination to assist in identifying additional resources in the community.

HeartShare

We support two specific populations across all of New York City: children and adults with developmental disabilities; and children and families dealing with the trauma associated with family separation. Each population faces its own distinct set of challenges and obstacles — and we are set up accordingly to meet them with understanding, evidence-based solutions, and interconnected programming. While the actual work of each focus area varies, Heartshare as a whole is driven by a few guiding principles. These ideas form the foundation of all work — from how we judge our success to how we set ambitious plans for the future.

Heartspring

Therapeutic residential autism program with 24-hour structured educational supports.

Hospital for Special Care-Autism Inpatient Care

Service Type: Specialized Inpatient Unit

Designed to care for individuals who are displaying severe and treatment-resistant behavioral disorders, or have experienced a decline in their usual level of psychiatric functioning.

iCraftStories

Yes, iCraftStories supports individuals who require high levels of support by providing customizable visual and narrative tools that simplify communication, routines, and social-emotional learning.

Illinois Guardianship and Advocacy Commission

Service Type: Guardianship

Created in 1979, the Illinois Guardianship and Advocacy Commission’s mission is to safeguard the rights of persons with disabilities by providing public guardianship services, legal representation in mental health proceedings, a process to investigate disability rights violations, and a resource for special education inquiries. The Commission is an executive state agency governed by a board of eleven Commissioners, who serve voluntarily, and are appointed by the Governor.

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Illinois Legal Aid Online Adult Guardianship Resources

Service Type: Guardianship

Guardianship of an adult is when a judge chooses a person to take care of another person who is 18 years old or older who can't make basic life decisions or manage their own property or money. Learn more about this process in the state of Illinois here.

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In Flight, Inc.

In Flight, Inc. empowers individuals with intellectual and developmental disabilities, including autism, to live independent and fulfilling lives. Our comprehensive services include residential programs, day habilitation, community habilitation, and vocational training through the I-SAIL Academy. We provide personalized support tailored to each individual’s needs, focusing on skill-building, employment readiness, and community integration. With a dedicated medical and clinical team, we also ensure access to health and behavioral services, fostering well-rounded care. At In Flight, we are committed to creating opportunities that promote inclusion, independence, and growth.

Inclusive Fitness

Inclusive Fitness® in West Roxbury offers sensory-friendly workouts for autistic and neurodivergent teens and adults. We provide expert coaching, adaptive strength training, and a structured, supportive environment. Unlike typical gyms, we prioritize accessibility, individualized programming, and a welcoming community where every athlete can succeed.

Isaiah Peace, LLC

Residential Services for adults with intellectual and developmental disabilities for Adult Individuals 18 years and older balance, supporting Individuals in completing daily tasks and in living a confident and independent life at home and in the community. Therapeutic Recreation is an allied health profession which focuses on improving Individuals quality of life in physical, cognitive, social, emotional, and spiritual, with an emphasis on leisure needs through activity interventions.

Ivey Ranch Park Association

Ivey Ranch Park Association is a 501(c)3 Therapy Horseback Riding: If you’ve ridden horses or enjoyed their gentle love, you know the experience is unlike any other. And for those with physical, mental, emotional or behavioral challenges, the interaction can be remarkably life changing. Therapeutic horseback riding can enhance strength, coordination, self-esteem, concentration, emotional states, posture, balance, a sense of wellbeing, personal mobility, a feeling of independence. Therapy Riding can help with Cognitive challenges (autism, Down's Syndrome, developmental disabilities, sensory integration disorder, ADD, ADHD); Physical challenges (multiple sclerosis, cerebral palsy, stroke, spina-bifida, paralysis) Childcare Program: Ivey Ranch Day Care is open to all children and is specially designed to meet the needs of the disabled, regardless of race, nationality or creed. It is the desire of the center to offer a mainstreamed program to benefit the child with special needs ages 5 through 21 years of age. In-Home Respite: We view respite as temporary relief for family caregivers. It’s a service in which care is provided to individuals with disabilities or special needs. We see respite care as a vital part of the continuum of services for families. Respite care reduces family stress, supports family stability, prevents abuse and neglect, and minimizes the need for out-of-home placement. It provides caregivers an opportunity to take care of other kinds of business or the opportunity to relax and take a break from the high demands of full-time care giving to special needs individuals. Ivey Ranch can provide in-home respite care to those who have contractual services through the San Diego Regional Center.

Kallen K. Hull DMD

Service Type: Dentist

Kansas Guardianship Program

Service Type: Guardianship

The Kansas Guardianship program is a volunteer-based model that provides guardianship or conservatorship services for vulnerable adults.

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Kansas Legal Services: Guardianship & Conservatorship

Service Type: Guardianship

This page contains resources for guardians and conservators in the state of Kansas.

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Kasari Lab

The Kasari Lab was established in 1997 and is part of the Center for Autism Research and Treatment at the University of California, Los Angeles. Dr. Connie Kasari, the principal investigator of Kasari Lab, has been actively involved in autism research for over 30 years and is one of the world’s leading experts in autism research and treatment. The Kasari Lab is devoted to creating interventions that are effective, evidence-based, and able to be implemented in everyday settings.

Kasari Lab | JASPAR Training

Joint Attention, Symbolic Play, Engagement, and Regulation (JASPER) is a treatment approach based on a combination of developmental and behavioral principles developed by Dr. Connie Kasari the University of California, Los Angeles (UCLA). JASPER is a targeted, modular intervention in the domain of social communication and included in the broader category of naturalistic developmental behavioral interventions (NDBI; Schreibman et al., 2015). It targets the foundations of social communication (joint attention, engagement, and play) and uses naturalistic strategies to increase the rate and complexity of social communication.

Kennedy Krieger Institute Neurobehavioral Unit (NBU)

Service Type: Specialized Inpatient Unit

16 bed inpatient unit dedicated to the assessment and treatment of children and young adults with severe and treatment resistant behavior disorders and DDs.

Kinship Behavioral Health & Support

Kinship BHS serve individuals struggling with autism spectrum disorder (ASD) and its associated comorbidities, anxiety-related disorders and obsessive-compulsive disorder (OCD). Therapy is provided through telehealth and in people's homes in the North Dallas area. We provide evidence-based behavior therapy to preteens, teenagers, young adults and adults and have an approach to personalize therapy to the individual's needs.

Kool Stop Koolstride Special Use Jogger

Resource Type: Website

Service Type: Other Community, Home Adaptations/Tools

The Kool Stop Koolstride Special Use Jogger proudly features sealed bearings on all wheels, stainless steel spokes with aluminum hubs and rims, safety strap, top canopy, adjustable handle, and patented Kool fold system. A high-quality stroller is designed to hold a person up to 150 pounds. Quick-release wheels for easy fold down and transport. The large wheels make walking easy on pathways, gravel, or grass. Portable and all-terrain, this stroller will go wherever you're going. It features a stainless steel frame and built-in canopy for maximum durability and all-weather use. Jogging Stroller is simple to store and convenient to take with you wherever you go.

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Laurel Heights- Acute Inpatient Psychiatric

Service Type: Specialized Inpatient Unit

Some of the patients who receive psychiatric care at our facility present with comorbid Autism Spectrum Disorder or other neurodevelopmental disorders, and our highly trained staff are uniquely qualified to help these patients get the compassionate, comprehensive care they need.

Legal Aid of Nebraska Guardianship Handbook

Service Type: Guardianship

This Guardianship Handbook was developed by Legal Aid of Nebraska, a private, non-profit law firm that provides legal services to low-income Nebraskans.

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Linkage Program

Service Type: Allergist, Cardiologist, Dermatologist, Dentist, Endocrinologist, Gastroenterologist, Other Community, Psychiatrist, Primary Care Physician, Oral Surgeon, Neuropsychologist, Neurologist, Ear, Nose, and Throat

A free health program through Georgia State University and the Centers for Disease Control focused on connecting adults with disabilities to accessible, community-based health care services, providers and resources. This includes free Zoom sessions with a case navigator from GSU to help connect you with healthcare resources, including medical, dental and more. This program has an emphasis on general healthcare for adults with disabilities throughout the state. If you are interested in learning more about it, please contact the coordinator directly: Ellen Lopez [email protected] 404-913-3259

Lupe Castaneda, BCBA, LBA

I am a Board Certified Behavior Analyst who provides services to individuals with autism of all ages. I specialize in working with adolescents and adults who are severely impacted by their disability.

Lurie Center for Autism

The Lurie Center for Autism is a multidisciplinary clinical, research, training and advocacy program dedicated to treating individuals with autism spectrum disorder and other developmental disorders across the lifespan.

MaineHealth Behavioral Health at Spring Harbor

Service Type: Specialized Inpatient Unit

Hospital-Based Developmental Disorder Care | MaineHealth Behavioral Health at Spring Harbor MaineHealth Behavioral Health provides inpatient services for children and young adults with developmental disorders who are not functioning safely at home, school or in the community. Expert hospital-based care for developmental disorders We achieve excellent patient outcomes through a combination of expert programming, evidence-based protocols, and the individual potential of each patient. Our multidisciplinary treatment team includes: Psychiatrists Clinicians Behavioral experts Occupational and speech therapists Dieticians Educators All services are delivered by professionals trained in the unique needs of children with developmental disorders. At all times, we carefully balance each child's need for support with independence. Children are given the opportunity and support to make good decisions and learn from their successes.

Marcus Autism Center

Service Type: Specialized Autism Center

As one of the largest autism centers in the U.S., Marcus Autism Center offers families access to the latest research, comprehensive testing and science-based treatments.

Maryland Courts Adult Guardianship Videos

Service Type: Guardianship

Videos that explain what guardianship is, when guardianship is appropriate, and the legal process for becoming a guardian in the state of Maryland

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Maryland Courts Guardianship Forms

Service Type: Guardianship

Forms for applying for guardianship in the state of Maryland

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Massachusetts Guardianship Association Handbook for Massachusetts Guardians

Service Type: Guardianship

This handbook provides an overview of responsibilities and resources for new guardians of incapacitated persons in the state of Massachusetts.

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Massachusetts Guide to Rogers Guardianship

Service Type: Guardianship

This booklet provides information about Rogers guardianships, for adults, in Massachusetts. This is a type of guardianship where the Court determines the Guardian will be given authority to agree to extraordinary treatment for the Incapacitated Person. This usually refers to treatment with antipsychotic medication but it may include other intrusive treatments and procedures. This booklet is intended to be a guide, and includes information regarding guardianship procedures, what forms to file, and duties of guardians.

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May Institute

Service Type: Specialized School

Established in 1992, the May Center School for Brain Injury and Neurobehavioral Disorders is one of only a few pediatric programs in the United States focusing on both education and rehabilitation of children and adolescents with neurobehavioral, genetic, and related disorders. This nationally recognized school provides exceptional services to children, adolescents, and young adults, ages 5-22, with a broad range of neurobehavioral challenges. These include brain injury, genetic or chromosomal disorders, seizure disorders, mood disorders, and intellectual and neurodevelopmental disorders. We provide full-day, year-round educational, behavioral, medical, and rehabilitative services, and use established treatment and educational methods based on the latest instructional, clinical, and applied behavior analytic research. School services may be combined with our community-based residential program at one of several homes either on-campus or in nearby neighborhoods. Children and adolescents with neurobehavioral disorders and related challenges need a "home away from home" where they can belong, and an environment that supports skill development and rehabilitation, and fosters new friendships. The May Center School is just such a place. Here, our students from around the country learn to overcome obstacles, develop critical life and communication skills, control impulsive and aggressive behaviors, and become more independent. Children with traumatic brain injury learn to walk and talk again. With the support of a highly trained and compassionate staff, students continue to learn and grow while receiving the specialized services they needed to achieve their personal best. Some of our students graduate from high school, others focus on career and vocational skills; and others return to a less restrictive environment with new life skills, a sense of pride, and hope for the future. Located in Norwood, Mass., 25 miles from Boston and less than 30 miles from Providence, R.I., the May Center School is a Massachusetts Chapter 766-approved school.

May Institute – Residential Schools

Residential school and ABA-based education programs for individuals with profound autism.

Melmark Carolinas

Melmark Carolinas serves students with a range of developmental disabilities including autism, intellectual disability, fetal alcohol syndrome, traumatic brain injury, Down syndrome, and more. The Melmark Carolinas school educates students on both the extended and general content standards, with students working towards a standard high school diploma, the occupational course of study diploma, or a certificate of completion for students accessing adapted content.

Melmark Pennsylvania

Residential school and intensive behavioral services for individuals with autism and IDD.

Mental Health Legal Advisors Committee Pamphlet: Guardianship of an Adult in Massachusetts

Service Type: Guardianship

This pamphlet describes Massachusetts law regarding guardianships of adults.

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Merakey

Merakey is committed to building better communities, one individual at a time. We provide services for the whole person, so everyone can find dignity, fulfillment, and growth in their lives. We serve 5 adults with Autism in the Phoenixville area, The Program is called Chester County Adult Autism.

Mission for Educating Children with Autism

Missouri Department of Health & Senior Services Guardianship and Conservatorship Q&A

Service Type: Guardianship

This document provides answers to common questions about guardianship and conservatorship in the state of Missouri.

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Missouri Developmental Disabilities Resource Center Guardianship Packet

Service Type: Attorney, Guardianship

This packet includes topical information, personal stories, and resources regarding guardianship in the state of Missouri.

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Morgan’s Multi Assistance Center

Provides supports, accommodations and services to serve members that include people with profound autism.

Nashoba Learning Group

Service Type: Specialized Autism Center

NLG was founded in 2002 to offer a different life trajectory for individuals with Autism. Today NLG’s School provides outstanding, individualized education, training, and intervention services for students 3-22 with Autism Spectrum Disorders. NLG’s Adult Program opened in 2013, providing ongoing support to adults with Autism.

National Autism Law Center

Resource Type: Website

The National Autism Law Center's mission is to enforce and expand the legal rights and protection of individuals with autism, providing support for them and their families, as well as the service providers and attorneys who assist them.

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Nationwide Children's Behavioral Health Pavilion

Service Type: Specialized Inpatient Unit

Not specific to ASD or IDD, but will help any child in crisis.

Nebraska Supreme Court's Office of Public Guardian: Becoming a Guardian and/or Conservator

Service Type: Guardianship

Presentation by the Nebraska Supreme Court's Office of Public Guardian on becoming a guardian and/or conservator

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NESCA

Service Type: Neuropsychologist

I provide neuropsychological evaluations as well as school/program observations for individuals with profound autism.

Nevada Autism Center

We provide services for kids with profound Autism, their families, caregivers, and guardians. We use scientifically-backed modalities like ABA therapy, Social Skills, and family training.

New England Center for Children

Service Type: Specialized School, Residential Program

The New England Center for Children provides educational and consultative services to individuals diagnosed with autism. We offer day and residential programs in Southborough, MA; we partner with public schools around New England to offer educational and consultative services to public school students; and we offer the ACE, a web-based educational software with curricula and assessment tools to teach learners with autism.

New Hope Community

Service Type: Day Habilitation, Residential Program

Since 1975 New Hope Community has been empowering the lives of individuals with intellectual and developmental disabilities (I/DD). At New Hope Community we have chosen to invest in programs and spaces that are unique in our field. We believe that these elements make us a premier point of support for people with I/DD. Through teaching, coaching, encouragement and role modeling, New Hope Community advocates for people to integrate into and participate in the wider community. We offer the rare gift of connection, appreciation and friendship with remarkable individuals who have unique personalities, interests, and abilities. We are a committed and dedicated team that believes in our purpose and puts those we support first. With thirty-eight residential homes, day habilitation, Without Walls program, supported employment, equine therapy, music and art therapies, holistic wellness programs, sports, Special Olympics and Hope Farm, New Hope Community’s holistic approach towards supports and services enriches and empowers lives.

New York Alliance for Inclusion & Innovation

Resource Type: Website

Housing Navigation is a focused, outcome oriented, and time limited service that helps people with I/DD who need or want to move to community-based housing to obtain and maintain stable, long-term housing of their choice.

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New York Housing Resource Center

Resource Type: Website

The New York Housing Resource Center is an extensive source of information on important housing-related topics for people with intellectual / developmental disabilities (I/DD).

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New York State Unified Court System: Guardianship of an Intellectually or Developmentally Disabled Adult

Service Type: Guardianship

This website provides information about applying for guardianship for an intellectually or developmentally disabled adult in the state of New York.

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NonBinary Solutions & Knowetic.ai

Our software is designed to help build treatment pathways specific to individual needs, including profoundly affected individuals.

Northwest Justice Project Guardianship Resources

Service Type: Guardianship

Information about guardianship and other alternatives in Washington State

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Nova Support Services

Group home provider for adults with dd waiver

Office of the Texas Governor: Guardianship

Service Type: Guardianship

Find information on key laws and resources for Texans wanting to learn about guardianship. This page provides information on both resources and contacts that can help when looking for guardianship information in the state. Additionally, this page includes a summary of laws by topic that may impact guardianship agreements in Texas.

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PlatinumCare, Inc dba ComForcare Home Care - Chester County South

Service Type: Other Community, Respite

ComForCare Home Care Chester County South can help individuals with daily activities such as grooming and bathing, hygiene, dressing, meal preparation, medication reminders and transportation. Our dedicated caregivers can be available a few times per week up to 24 hours a day to provide care, depending on what the client needs. With ComForCare's personal care services, families have peace of mind knowing their loved one is receiving the best care possible in a comfortable, familiar environment.

Profound Autism: A Parent’s Guide | National Autism Center at May Institute

Resource Type: Website

The National Autism Center at May Institute acknowledges the urgent need for more resources and support for caregivers of profoundly autistic children. Profound Autism: A Parent’s Guide is now available to help meet this need. Specifically designed for parents, family members, and caregivers, this groundbreaking guide is the first of its kind to focus exclusively on the unique challenges and needs of profoundly autistic individuals.

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Profound Village

Welcome to Profound Village - a private community of professionals and caregivers sharing resources and their lived experience with Profound Autism.

Providence Corporation

Providence Corporation is a non-profit organization that works to ensure that Pennsylvania Residents are afforded a high quality of life regardless of their intellectual and/or developmental abilities. Our goal is to ensure that our clients live the Everyday Lives principles.

Quantum Behavior Consulting llc.

Quantum Behavioral Consulting provides applied behavior analysis and special education consulting services to schools, related agencies, and families throughout Connecticut and Central-Western Massachusetts. We specialize in providing consultative guidance to curriculum and behavioral programming to programs that serve individuals with autism, intellectual disabilities, behavioral disabilities, and psychiatric disabilities. At Quantum Behavioral Consulting, our mission is to maximize individual potential and increase independence in community participation for people with disabilities, using humane research, validated teaching, and behavioral change procedures. Proudly serving schools and families in Connecticut and Massachusetts since 2008.

REED Intensive Behavior Services

Service Type: Applied Behavior Analysis

REED Intensive Behavior Services (RIBS) will be a clinic-based day program designed to serve students diagnosed with autism who cannot be served in less intensive settings due to severe challenging behavior. Services focus on intensive Applied Behavior Analysis (ABA) assessment and treatment strategies designed to reduce severe challenging behavior, increase adaptive behavior, and then transition students to a less-intensive level of care.

Resilite

Resource Type: Product

Service Type: Sensory Resources, Other Community, Home Adaptations/Tools, Crisis Management, Crisis Management Resources

Resilite has been manufacturing quality athletic mats since 1959, having grown from its start as a wrestling mat producer to its standing today as the leading manufacturer of protective mats and padding for wrestling, gymnastics, cheerleading, pre-school, tumbling, martial arts, and more. Our reputation for customer satisfaction and first-class workmanship has made Resilite the world's largest mat manufacturer.

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Resources for Families: FAQs About Applied Behavior Analysis

With input from CASP members and autistic adults who received ABA services as children, CASP has produced educational "Frequently Asked Questions about ABA" documents for consumers.

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Resources for Pediatricians: About ABA

With input from CASP members and autistic adults who received ABA services as children, CASP has produced educational "Frequently Asked Questions about ABA" documents for pediatricians.

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RiverValley Behavioral HealthShort-Term Autism Treament and Evaluation Program (STATE)

Service Type: Specialized Inpatient Unit

Inpatient care for children and adolescents diagnosed with ASD.

Rush University Medical Center: Guardianship Information

Service Type: Guardianship

A compilation of resources regarding guardianship in the state of Illinois.

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Sagamore Children’s Psychiatric Center- The Intensive Treatment for Children with Autism and Neurodevelopmental Disorders (ICAN)

Service Type: Specialized Inpatient Unit

Treats people ages 10-18. This program gives children with co-occurring neurodevelopmental disorders a high level of structure, consistency, and predictability.

SCO Family of Services

Located in Queens, NY, our Intermediate Care Facilities (ICFs) are residences with 24-hour care for individuals with developmental disabilities that provide the highest level of care outside of a skilled nursing facility. A caring staff, including psychologists, nurses and clinicians attend to their physical, emotional, and educational needs. The individuals receive speech, occupational, and physical therapies, and enjoy a wide variety of recreational activities. They are also trained in all areas of daily living skills, with the goal of making each person as independent as possible.

Seattle Children’s Hospital, Psychiatry and Behavioral Medicine Unit, Biobehavioral Inpatient Program

Service Type: Specialized Inpatient Unit

Specialized inpatient program serving youth ages 4-17 with severe intellectual and developmental disabilities with mental and behavioral health concerns, housed within the larger inpatient psychiatry unit.

SensoryGift.com — Practical Sensory Support Hub

SensoryGift.com is an evidence-informed, free online resource that helps families, educators, self-advocates, and caregivers understand and implement sensory tools across the seven sensory domains (tactile, visual, auditory, vestibular, proprioceptive, oral, and olfactory). The site offers accessible guides, a sensory-matching quiz, and practical strategies for creating inclusive, calmer environments in homes, classrooms, and communities. By promoting choice, self-advocacy, and understanding of sensory needs, SensoryGift supports dignity and independence for people with autism.

Sheppard Pratt Child & Adolescent Neuropsychiatric Unit

Service Type: Specialized Inpatient Unit

Philosophy of Care The Child and Adolescent Neuropsychiatric Unit at Sheppard Pratt’s Towson hospital is a safe, secure, and highly specialized 14-bed inpatient unit. It is designed for children ages five through 17 who have autism spectrum disorder and/or an intellectual disability. While children are in our care, our focus is on safety and crisis stabilization; children and adolescent generally come here after engaging in extreme aggression at home, experiencing severe difficulties in school, or when behavior is out of control to the point that it cannot be managed at home. Who We Treat We treat children and adolescents with autism spectrum disorder and/or intellectual disabilities; some of those we treat may have experienced a severe traumatic brain injury (TBI) that has caused lasting brain damage, while others have genetic syndromes. During each child’s stay, we focus on crisis stabilization and behavior management to ensure that they are safe towards themselves and others before they return to the community. The entire treatment team is involved in every aspect of care, and is focused on a positive outcome for your child. The average length of stay on the Child and Adolescent Neuropsychiatric Unit is usually between two weeks and one month.

Social Security Administration Digest of State Guardianship Laws

Service Type: Guardianship

This digest of state guardianship laws provides state-specific information about the appointment of guardians and other persons for individuals who are incapable of managing their personal or financial affairs.

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Society for Developmental and Behavioral Pediatrics

Service Type: Developmental/Behavioral Pediatrician

The Society for Developmental and Behavioral Pediatrics was founded in 1982 by a small group of forward-thinking pediatricians and their colleagues. SDBP is now an interprofessional organization dedicated to improving the developmental and behavioral health of children by providing exceptional leadership and promoting research, education, advocacy, and practice. SDBP advocates for an integrated approach to the biological, psychological, social, educational and cultural influences on children, youth, and their families.

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SPARK for Autism

Service Type: Other Community

SPARK is an autism research study and a growing community of autistic individuals, their families, and researchers on a mission to advance the understanding of autism. SPARK’s mission is to improve the lives of people with autism by identifying the causes of autism and informing more effective therapies, treatments, services, and supports.

Special Needs Alliance

Service Type: Attorney, Guardianship

The Special Needs Alliance (SNA) is a national organization comprised of attorneys committed to the practice of disability and public benefits law. Individuals with disabilities, their families and their advisors rely on the SNA to connect them with nearby attorneys who focus their practices in the disability law arena.

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Spectrum Intervention Group

Yes

Start Genetic

Service Type: Geneticist, Other Community

Start Genetic was born from the vision and dedication of patient advocates and genetics professionals who share a core belief: everyone with a genetic condition has the right to access genetic testing and receive an accurate and timely diagnosis. This knowledge is crucial for improving care, management, and overall well-being. We are committed to bridging the gap between the latest advancements in genetic testing and the individuals and families who can benefit from them. Our mission: empowering you to move forward Our goals are to: Encourage and normalize conversations around genetic testing and genetic disorders, creating a more open and supportive environment Educate the public about what genetic testing is and the profound impact it can have Reduce stigma around genetic testing Drive action, empowering people to confidently and proactively ask their or their child’s healthcare providers about genetic testing when facing unexplained symptoms or conditions Make genetic testing easy to understand and accessible to everyone Grow and strengthen genetic disease communities, fostering connection and support.

State Comparison of Applied Behavior Analysis Medicaid Benefits

Service Type: Applied Behavior Analysis

The Council of Autism Service Providers has compiled a state comparison of the availability of applied behavior analysis.

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StoneCrest Center- Mental Illness/Developmental Disability Program (MIDD)

Service Type: Specialized Inpatient Unit

133-bed psychiatric treatment center for adolescents, adults, and seniors who are in need of specialized behavioral healthcare services.

Streamwood Hospital- Behavior Intervention Unit

Service Type: Specialized Inpatient Unit

Dedicated to providing evidence based treatment to children and adolescents (4-17 years), diagnosed with ASD.

Summit Adaptive Sports, Inc.

At Summit Adaptive Sports, our goal is to foster a healthy lifestyle through outdoor sports for individuals with disabilities in a fun, accessible and inclusive environment. Under our carefully trained volunteers, athletes will have access to programs that provide skills training, social experiences, and confidence. Autism specific training for our volunteer Coaches is conducted by Scott Roderick (founding board member) M.A., BCBA, LBA, LABA and Karen Cook, mother of 28 year old son with profound autism. Autism specific training is required of all volunteers and staff yearly and is also ongoing. Experienced volunteers mentor new volunteers for several months. All lessons are individualized with independence, to the greatest extent possible, always the goal as individuals gain experience in outdoor sports. We are committed to coaching individuals to reach their fullest potential.

Superior Court of California | County of San Bernardino: Guardianship Steps

Service Type: Guardianship

Establishing a Guardianship can become very complicated. The basic steps for completing this process in San Bernardino County are listed below.

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Take A Swing

Resource Type: Product

Service Type: Sensory Resources

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Taproot Behavioural Consulting Inc.

Taproot is a small consulting company run by two BCBAs with decades of experience providing services to individuals with profound autism including direct treatment and family support. Our consultants each also have 10 to 20 years of experience in this area.

Texas Health and Human Services Guide to Adult Guardianship

Service Type: Guardianship

This guide by Texas Health and Human Services will help answer these questions: What is guardianship? What can guardianship do and how will it help? What are the limitations of guardianship? What are the alternatives to guardianship? Who can be a guardian?

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The Academy of Special Needs Planners

Service Type: Attorney, Financial Advisors/Planners, Guardianship

The Academy of Special Needs Planners consists of special needs planning professionals such as attorneys, financial planners and trust officers who provide the highest quality service and advice to persons with special needs and to their families.

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The Autism Project

The Autism Project, based in Johnston, Rhode Island, is a non-profit organization committed to improving the lives of children and adults with developmental disabilities, including those diagnosed with profound autism. Our services include professional training, parent education and coaching, Social Groups, a Summer Camp, and Adult Programming designed specifically for individuals on the autism spectrum. In 2024, we supported 126 individuals with profound autism across our social programs from 5 years old to 34 years old. Our Social Groups focus on enhancing social interaction and communication skills for children, teens, and young adults with autism spectrum disorder (ASD), emotional regulation challenges, or related communication disorders. These groups are led by highly trained professionals, including speech-language pathologists, occupational therapists, and mental health practitioners, and are supported by educators and staff trained in best practices for working with individuals with ASD. This year, TAP introduced a new group for members using AAC devices. The group is unique since everyone, including staff must use a device. The intent is to level the field for all. Staff gained insight into what it’s like for the conversation to move on before you finish your thought. How hard it is to keep up with the conversation as you form your answer. Members of the group increased their usage of their individual device in this group, as well as other groups they participated in. Camp WANNAGOAGAIN! is another key program, offering participants the chance to engage in real-life experiences, learn new leisure skills, and form friendships in a structured and supportive environment. The camp is staffed by experienced professionals who understand the unique needs of individuals with severe and profound autism. In 22 years, no camper has been sent home! It’s not always easy, but staff knows how important it is to problem solve in real time to keep a camper safe and content. It’s camp. It’s their camp and it’s our job to bring the supports, interests and compassion to keep the camper engaged and ready to come back the next day. Our Adult Programming, known as Unity Community, is tailored for autistic adults and focuses on fostering friendships and creating memorable social experiences. Among the various groups we support, our profound autism group meets in person on Mondays and Wednesdays from 10:30 a.m. to 12:30 p.m. During these sessions, participants engage in physical activities suited to their abilities, contribute to the upkeep of a community garden, and undertake tasks such as mail delivery, organizational work, and maintaining the group room. These activities are guided by the lead facilitators who ensure that the programming is both meaningful and supportive of the individuals' growth and development. TAP’s commitment to individuals with profound autism spans 30+ years. Our staff brings years of classroom experience and passion to improve the lives of all autistic people. TAP is the only organization in Rhode Island with ongoing social groups (31 weeks each year) and a summer camp (3 weeks) where all are welcomed and supported to ensure their successful participation and learning. This is our 21st year. To accomplish this, TAP uses an incredibly detailed application. Staff educates caregivers that we need to know strengths and challenges so we can build a staff to meet the individual’s needs. We do not want any surprises in the woods at camp! For some it means being in a parallel group as they familiarize themselves with the building, staff and routine. Each week spending a little more time with the group until they are ready. For some it’s a matter of weeks, for others, months. That is okay. The goal is to make the experience a comfortable and stress free for the member and their family. The goal is to have people come BACK! TAP’s Family Support Specialists are also available to coach families with evidence-based strategies, resources, and school concerns. They are all parents of individuals with autism and receive extensive training on strategies for support as well as how to be there for a caregiver across the lifetime for support, information, and encouragement. FSS team members do individualized training for caregivers across the lifetime. Our professional training department lead trainer is a master level educator with over a decade of experience teaching students with profound autism in New England and Italy.

The Center for Developmental Disabilities

Founded in 1958 with our Children’s Day Program, the Center now provides comprehensive services for children and adults with intellectual and developmental disabilities. We offer a wide range of programs and supports that include day and residential services for both children and adults, employment services, and community habilitation.

The Center for Discovery Children's Residential School Program

Residential school, medical, and clinical supports.

The Center for Discovery Children's Specialty Hospital

Service Type: Specialized Inpatient Unit, Specialized Autism Center, Specialized School

The Children’s Specialty Hospital is designed specifically to serve children and adolescents with complex developmental disabilities, including profound autism and medical fragility. It provides short-term inpatient medical and clinical care provides comprehensive medical, behavioral, and clinical supports over a maximum of six months to New York State residents between the ages of five and twenty-one.

The ELIJA School/Foundation

Service Type: Applied Behavior Analysis, Specialized Autism Center, Specialized School

The Groden Network

The Groden Network provides comprehensive support for individuals with autism and developmental disabilities throughout the lifespan, including: - Educational and Therapeutic Services: Customized learning programs, behavioral therapy, speech therapy, and occupational therapy. - Residential and Community Support: Safe living environments, vocational training, and social skills development. - Family and Advocacy Programs: Resources, training, and outreach to empower families and promote community inclusion. These services focus on fostering independence, growth, and inclusion for individuals and their families.

The Insurance Resource Center

Service Type: Caregiver Training

Resources for consumers, providers, clinicians, employers, and educators on issues related to medical insurance for autism and behavioral treatments.

The National Parks and Federal Recreational Lands Access Pass

Resource Type: Website

Service Type: Other Community, Profound Autism Friendly Business

The Interagency Access Pass is part of the America the Beautiful – The National Parks and Federal Recreational Lands Pass series and is available free for US citizens or permanent residents with permanent disabilities.

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The Summit Center, Inc.

The Unumb Center for Neurodevelopment

The mission of The Unumb Center for Neurodevelopment is to help individuals with autism across their lifespan reach their full potential by providing comprehensive, evidence-based services and collaborative solutions for the needs of the autism community.

Therapeutic Arts Group

To use music and art within a therapeutic relationship to help our clients attain goals, cope with hardship, overcome physical and mental challenges, and improve their quality of life. (Yes, we work with clients with Profound Autism.)

UCP of Long Island

Residential, educational, and therapeutic supports for individuals with profound developmental disabilities.

University of Pittsburgh School of Medicine Western Psychiatric Hospital- Specialized Inpatient Services for Children and Adolescents

A specialized inpatient unit available for children and adolescents having acute behavioral and emotional problems, and who have ASD, intellectual disabilities, and other DDs.

University of Pittsburgh Western Psychiatric Hospital Specialized Inpatient Services for Adults

Service Type: Specialized Inpatient Unit

A specialized inpatient unit at UPMC Western Psychiatric Hospital is available for adults experiencing acute behavioral and emotional problems, and who have autism spectrum disorder, intellectual disabilities, and other developmental disorders. The inpatient unit provides acute stabilization where adults receive active, short-term treatment, specialized evaluation, and referral.

University of Pittsburgh Western Psychiatric Hospital Specialized Inpatient Services for Children and Adolescents

Service Type: Specialized Inpatient Unit

A specialized inpatient unit at UPMC Western Psychiatric Hospital is available for children and adolescents having acute behavioral and emotional problems, and who have Autism Spectrum Disorder, intellectual disabilities, and other developmental disorders. The unit provides acute stabilization and specialized evaluation, treatment, and referral.

UNSEEN (Caregiver Documentary)

Service Type: Other Community

About the Documentary Unseen follows Jess and Ryan Ronne, a blended family with 8 children, including Lucas, who has profound disabilities requiring total care. Their situation has gotten more and more challenging as Lucas gets older and stronger. With limited resources and support, caregiving takes a toll on their physical and mental health. It’s a common story among parent caregivers: the isolation, uncertainty about the future, lack of options, and a never-ending daily to-do list means the role of caregiver overpowers nearly every other facet of life. Video diaries from diverse caregivers featured in the film illustrate this universality, while interviews with mental health and policy/legal experts provide a broader view on the societal impacts. Through the power of unfiltered, compelling human stories, Unseen cultivates compassion and tangible support for the caregivers in our communities.

Upstate Caring Partners

Yes. We provide day and residential services for New York State residents with profound autism across the lifespan.

Upstate Caring Partners

Integrated education, residential, and behavioral health services for individuals with autism and complex needs.

Upstate Children's Pavilion - Biobehavioral Health Unit

The Biobehavioral Health Unit (BBHU) Inpatient Unit is an 11-bed inpatient unit that provides behavioral and mental health care and one-to-one behavioral healthcare to individuals 5-17 years of age with multiple mental and behavioral health diagnoses who also display severe destructive behavior. The goal of the unit is to help stabilize patients so they may return to their homes and activities.

Utah Autism Academy

Utah Autism Academy (UAA) is designed to offer center, home and community based intensive therapeutic interventions and instruction for individuals across the range of the autism spectrum and their families. Each program and treatment plan is individually developed by a collaborative team of professionals to create an optimum learning environment for a broad spectrum of ability. UAA also serves as a facility for training and developments of higher education students and professionals to grow in the field of behavior modification therapies and autism related careers.

Utah State Courts Self-Help Resources / Guardianship and Conservatorship

Service Type: Guardianship

This website has information about guardianship and conservatorship in the state of Utah.

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Virginia Guardianship & Conservatorship Forms

Service Type: Guardianship

Virginia Judicial System forms for guardianship and conservatorship

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Vote the Spectrum

Resource Type: Website

Service Type: Other Community

Parents & Caregivers If you’re a parent or caregiver of someone with autism or other disability, know this: depending on their guardianship, they may have the right to vote.

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Washington State Developmental Disabilities Administration Guardianship Resources

Service Type: Guardianship

Guardianship basics and frequently asked questions in Washington State

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Woods Services

Residential treatment and clinical services for individuals with autism and complex medical/behavioral needs.