Profound Autism Advocacy

We are building a formidable alliance to engage in positive, effective, ongoing federal and state advocacy.

Members of Congress regularly make decisions that affect people with profound autism and their caregivers. Unfortunately, most have never even met someone with profound autism and have little understanding of the struggles and isolation people with profound autism experience.

Profound Autism Alliance’s consistent presence on Capitol Hill will establish our community as one that makes meaningful change occur.

People with profound autism require lifetime, 24/7 care. Many are struggling due to the lack of Medicaid funding for the services they depend on for their very survival. Please help us ensure that leaders in Washington don't make things worse for our population through arbitrary cuts.

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Last updated February 24, 2025. Please check back often.

As part of our Profound Autism Advocacy Network:

You will build relationships with other advocates from across the country.
We will provide ongoing training, resources, and support.
You can participate virtually in most instances, which is perfect for caregivers who find it hard to get out of the house.

Join the profound autism advocacy network